Relief is a hair shampoo!!!
Long night again, just plain uncomfortable. Walked the halls alot. G-tube seemed to be the main culprit. Got it cleared around 4:00 am. Things calmed down along with pain. Lots of sleep (not) 4am – 7am. Dr. Dunn and Dr. Borja stopped in A.M. They are going to pull J-tube (one that drains fluids in body cavity) and morphine pump. Praise GOD!!!! 2 more tubes eliminated!!!They will now give her short term morphine orally through her feeding tube ( lasts 3 – 4 hours ). Hopefully she will get a little more sleep with this. Now we wait for the Dr. to come back and remove J-tube. Not a place to be impatient. She is snooring right now, hope that continues a while. Late afternoon get roommate (Robyn) she is getting a new pancreas, please add her to your prayer list, husband (Bret) have flown in from Kansas. Got a call early AM to fly in as they had a matching donor pancreas!!! Praise GOD!!! Angie told her all about her experience and what a fantastic surgeon Dr. Dunn is along with her team!!!! I think she helped calm her fears a little. Showed her what her incision will look like and all the tubes (don’t know if that part calmed anything) haha!! Dr. Borja came in and told us that they would remove J-tube in morning as they were preparing for Robyn’s transplant. We don’t mind, we want Robyn’s surgery to go as smoothly as possible and for them to concentrate only on her. GOD is watching over you Robyn!! I apologize for not explaining why they are watching Angie’s blood sugar levels so closely. They want to keep levels between (80 -120) so to keep the islets dormant, if BS levels get close to(200) islets will try to start producing insulin before they have had a chance to establish themselves in liver and die. This usually takes 2-3 months after islets transplant. Angie is getting bloated again, Mom is flushing G-tube, it sure is nice having your own personal nurse. Flush has helped some with bloating but not enough. They have upped her tube feeding to 30 ml an hour, (probably reason for her discomfort) but she needs to get to 45ml. I think its time for the E word again( poor Ang another enema). Time for Dad to head back to hotel. Just got word it worked, no bloating or pain.(hallelujah) Much more comfortable, should be a good night for both of them. Putting her back on Senakot and Colace (laxative). Nobody said life was easy!!! The good LORD is taking really good care of our girl and she is really progressing each and every day. The doctors, nurses and staff here are unbelievably fantastic!!!! We are so blessed. Thank you all for your support and prayers!!!!
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