Day 42   3 comments

Well day started out a little rough, a lot of pain coming from my G-tube. If you ask me I think its because it was ready to come out. We had a check up for nutrients through blood work. While waiting we ran into Louise the Islet Auto Transplant Coordinator who organizes everything and appointments with the surgeons. She suggested that pull the G-tube because it was time and with the G-tube hurting it couldn’t hurt to ask the doc. Off she went and call the doctor. So at 1pm Dr.Borja came in and removed the the tube 🙂 🙂 Let me tell you how much better that made me feel. I think most of my pain was coming from that tube because my pain has been improving today since I got it out. I also freaked Dr.Bojar out because I told him I ate a hamburger for dinner last. I thought he was going to fall on the floor (lol). He told me I can eat whatever I want when all of my tubes are gone and to take it easy for now. Now I know better. But the great news is that for the first time in 7 years a hamburger didn’t make me sick or cause pain, what a change. As for the rest of the day mom and I have been taking it easy back in the hotel. Louise is talking about possibly sending us home to Colorado next week if all goes well. Praying every day for this to happen, but not getting my hopes up too high.
Over the last few days a lot has changed as you could tell with the G-tube coming out we also have made changes to my diet. I’m now on night feeds only, which means I only have my feed tube connected at night and I’m free to eat during the day. We also have lowered my Insulin its now down to 6 units, which means my Islets are working and starting to kick in. Dr. Bellin also put me on NPH which is a 12 hour insulin which peaks around 5 to 6 hours. This is because I’m eating on my own during the day. The goal is to get off the night feed tomorrow and not have to use NPH. They want to make sure that my nutrients maintain just as if I were using the feeding tube.
I will let you know what happens next. First time blogging since surgery so I’m getting tired, I will blog tomorrow. God Bless.

Posted September 12, 2011 by admin in Uncategorized

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